A mixtape for multiple sclerosis

A mixtape for multiple sclerosis

Wednesday 17 January 2018

My back pages

When I was at school I had the most fantastic history teacher.

He was (and hopefully still is) small, enthusiastic and quite magnificently Welsh. He loved his subject with a passion – a passion that he tried his hardest to instill in his students.

Our lessons were full of him leaping on tables, whirling around rooms, re-enacting great speeches or taking us on wind-swept trips to ruined castles.

He was absolutely fascinated by the past, but his favourite mantra was one coined not by an historian, but by a writer.

The author in question was L.P. Hartley and the mantra was the first sentence of his 1953 novel The Go-Between: “The past is a foreign country; they do things differently there.”

And this week, as I hit 14 years with MS, I’ve been thinking about my own past, my own foreign country.

And like all history, there is the bigger picture – the revolutions, the wars, the political and technological game-changers. And then there are the individual portraits – the fireside, the family and the personal progress.

My bigger picture involves research, information, access to professionals and disease modifying drugs.

Fourteen years after my diagnosis, research is discovering the potentials for new treatments, new ways of predicting prognosis and a greater understanding of the role of genetics.

The wealth of information available is at an all-time high – websites, blogs, vlogs, tweets, support groups, local branches, soap opera storylines and publications are available to anyone newly diagnosed. (Although some need to be viewed with a degree of caution.)

Access to neurologists, MS nurses and physiotherapists as well as courses on fatigue management, emotional support and dietary advice is, at least in my local area, much better than the "Oh you’ve got MS, here’s a leaflet now go away" appointment I got after diagnosis.

And since 2004, a number of new DMDs have become available. Yes, there are still issues when it comes to accessing drugs and still not enough treatments for all forms of the disease, but it’s moving forward.

My individual portrait involves my working life, family life, friendships, symptoms and the person I am versus the person I was.

My working life I’ve covered, same for my family life and friendships. Pretty sure I’ve talked at length about my symptoms and the person I was then and am now.

There have been immense changes in the 14 years since my diagnosis, making a truth of L.P. Hartley's words.

But the future is a foreign country too - and although I’m taking my Tecfidera, striving to be positive and rolling with the punches, I can only hope that these are the right travel guides.


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